Mighty Man Marek

Headache #1 Well, we thought that we would be going home today. We were approved by insurance yesterday night and our drug representative ...

This morning we woke up thinking we would start on ACTH. However, every time the nurse came in we would ask, "Did the insurance approve...

After a long night of weighing our options we have decided to go with ATCH. Watching Marek have a 31 minute seizure this morning with over 2...

Morning Our neurologist came in to tell us that he has us scheduled for Marek's third EEG. They want to see if the Vigabatrin has cle...

Marek woke up in a great mood. He ate a nice big breakfast so he would be happy for his PT appointment. Unfortunately as he was in his car s...

I haven't updated everyone in a few days because there really isn't anything to say. Marek is still having seizures. He has had some...

After a very sleepless night (I swear Marek was up every hour) he "woke up" in a very chipper mood. He discovered for the first ti...