Mighty Man Marek

It's been a while since I last updated everyone on Mighty Man. Things have been crazy around here with rearranged therapy sessions (a fe...

We received all of our test results back...FINALLY.  The official results for Marek's retina test was normal. So we now know that any pr...

Marek has been doing so much better these last few weeks (I'm going to go knock on wood real quick because it makes me nervous to write ...

Marek has been working hard this last week. We have been adjusting to my mom being gone and trying to figure out sleeping arrangements. As...

Marek did great during the EEG. He fussed while they put his leads on but once his little hat was on he was the best baby. As soon as he wa...

Marek has finally adjusted to his medication, Sabril/Vigabatrin. When we started the medicine last Friday he was very tired and fussed all...

Marek's benefit on Saturday was absolutely amazing. It was very emotional for both of us but in a good way. We have never felt so muc...