Mighty Man Marek

Our Little Superhero's Fight Against Infantile Spasms

Monday, July 20, 2015

Happy 1st Birthday

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Dear Marek, Wow, one year old! Happy first birthday my sweet boy. This last year has been filled with the happiest and scariest days of ou...
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Wednesday, July 15, 2015

Second Trip to Detroit

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Thanks for all of the texts, prayers and support the last few days. We are on our way home now. We are going to try to make it all the way ...
Sunday, July 12, 2015

Heading to Detroit

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We celebrated Marek's first birthday yesterday in Marengo. It was AMAZING!! I will post a separate entry all about his birthday parties ...
Monday, June 29, 2015

Life off Steroids

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It's been a while since I last updated everyone on Mighty Man. Things have been crazy around here with rearranged therapy sessions (a fe...
Tuesday, June 16, 2015

Test Result Update

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We received all of our test results back...FINALLY.  The official results for Marek's retina test was normal. So we now know that any pr...
Tuesday, June 9, 2015

Last Week of Steroids

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Marek has been doing so much better these last few weeks (I'm going to go knock on wood real quick because it makes me nervous to write ...
Saturday, May 30, 2015

Regained Milestones and Memorial Weekend Fun

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Marek has been working hard this last week. We have been adjusting to my mom being gone and trying to figure out sleeping arrangements. As...
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