Mighty Man Marek

Our Little Superhero's Fight Against Infantile Spasms

Tuesday, October 6, 2015

Golfing, Chili and Fort Wayne Fun

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First off, I want to say THANK YOU to Scott Hopfinger and all of the planning committee for an AMAZING job with the golf tournament. It wa...
Sunday, September 20, 2015

Happy 14 Months Mighty Man

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Wow this month is just flying by! I can’t believe it has been three weeks since I have posted an update.  I don’t even know where to be...
Monday, August 31, 2015

EEG Results

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Last weekend Marek started having what we were calling “head drops.” While he was playing all of a sudden he would drop his head to the righ...
Monday, August 24, 2015

Keto Cancelled

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Oh man what a crazy couple of days.  On Thursday Ryan was on the phone with one of the parents we met in the hospital who has a daughter...
Wednesday, August 19, 2015

Countdown to Keto

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Marek only has a few days left to enjoy all the food goodies he wants. He has had pancakes with syrup, ice cream, donuts and much more. He...
Monday, August 3, 2015

August....ALREADY!?!?!

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I can't believe it is already August!  Marek has had a rough couple of weeks, but this time with "normal" baby issues. I ...
2 comments:
Monday, July 20, 2015

Happy 1st Birthday

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Dear Marek, Wow, one year old! Happy first birthday my sweet boy. This last year has been filled with the happiest and scariest days of ou...
1 comment:
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